Thank you for praying for our health as a family this week! Dave is on the mend (and on Z-pack), tho he is still coughing, and unable to visit Kyren. :(
Miraculously, neither Christian nor I have gotten ill!
So hopefully we are out of the woods, and Dave has taken one for the team.
Kyren continues to gain weight and is approaching 4 1/2 pounds already! He's up to 39 mL every 3 hrs, and if he nurses or takes a bottle before his feeding, they can weigh him before and after to see how much he's actually gotten, and subtract that from his tube feed. Technology! :)
They are beginning to talk about him coming home in the next month-- and it is all a little unnerving. I remember the doctor telling us the first day, that it would seem like forever that he was in the hospital, but when it was time to come home, we wouldn't be ready for it. It would be sudden, and we'd feel unprepared. And as I think about the reality of it happening in just a matter of weeks, he's right! All of the details, doctor visits, sleepless nights, etc... are overwelming to think about, on top of caring for a 19 month old!
I know that God has brought us this far, and isn't going to leave us now-- but it is still somewhat of a daunting task-- to go from having 24hr nurse care and monitors, to having us be responsible for this little being's overall health!
One step at a time. A whole new adventure is about to begin. And as challenging as this one has been, I want to enjoy every last moment of its peacefulness and 'freedom', before the next chapter unfolds!
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and... what... an exciting chapter.
I am so thankful - though it's unimaginable to me, just how thankful you and Dave are - but so thankful to see what God has done. I can't wait to see many more miracles!
Hey...I remember all too well feeling the way you described. It is very nerve wrecking...and so exciting all at once. I know I went into overdrive preparing our home, recounting every little thing to make sure we had all the practical things ready. I did not want to worry about any of that stuff when Alex came home, I just wanted to focus on her. You will do fine. God will equipe you because He called you to this taks and there is grace and His provision for every moment. Just a heads up - once Kyren is home he will still be healing and you will have to work over time to not only care for him but also to protect his health over the next 2 years...It's a lot of work...and you have a long road ahead of you...I am still going through it! BUT you can do it!!! And it is sooo worth it! I can't even begin to tell you. You won't even feel like you are sacrificing; rahter, you will feel like you've been given a great privilage and waves of pride (in the Lord) will wash over you, especially when you are so worn out you don't think you can move! God will show you how to care for Kyren and what to do and He will give you the support you need every given moment. If you ever need to vent or chat you know my number. Soooo happy for you!!!! Go Kyren!
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